PPN is an organization that is dedicated to helping medical professionals better understand PANDAS and PANS through real-time information and networking. PPN Guidelines for Diagnostics and Therapeutics are developed by PPN committees and special advisors from the top academic medical institutions in the United States, including Harvard, Yale, Stanford, Columbia, Georgetown, NIH, and NIMH. Members of this elite group have worked with, treated, or studied the patients or aspects of the disorder. Because PANDAS & PANS are interdisciplinary disorders, all the relevant disciplines are represented on the PPN committees and the special advisory council.
The PPN Registry will be the primary PANDAS and PANS registry in the country. The HIPAA compliant, on-line registry includes parent and physician data on single patients thereby producing two data sets that can be used for research and diagnostic & treatment refinements.