ABOUT US:The Website is dedicated to helping physicians understand, diagnose and treat Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus’ (PANDAS) and Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and provides information about PANDAS and PANS for physicians, including: diagnostic guidelines; treatment options; research library; PPN physician directory; information about current research, trials, and studies concerning PANDAS and PANS; and an email group where medical professionals that are approved PPn members can discuss PANDAS and PANS, please contact PPN at: firstname.lastname@example.org.
INFORMATION WE COLLECT:The information we collect about you includes:
Non-Personally Identifiable Information:The Website and our third party Service Providers may collect or request anonymous or non-personally identifiable information (“Non-PII”) from visitors. Non-PII cannot identify a specific individual unless combined with Personally Identifiable Information. Examples of Non-PII that may be requested in registering or completing registration forms on the Website or using our Services may include: state, ZIP code, and PANS and PANDAS keywords; and for users who are medical professionals: medical practice, area of medical specialty, caregiving practice, practice name, hospital name, city, and national provider information.
Cookies and Web Browsing DataWe and our Service Providers collect anonymous information known as “Web Browsing Data” by storing small computer files on your computer, including cookies, web beacons, tags, flash cookies, updating log files, etc. (collectively, “Cookie(s)”) to personalize your visit and provide Services. Web Browsing Data is Non-PII. We or our Service Providers may collect Web Browsing Data such as: the Internet Protocol (IP) address of your computer or Internet Service Provider, your browser type, domain, the date and time of your visit, preferences, web pages you view on our Website, your responses to our display ads on other websites and websites you visit after the Website. We may use Google Analytics to collect Web Browsing Data to analyze the web traffic on our Website and other websites you visit to offer you Services.
California Online Personal Privacy Act Disclosures
(1) This Website does not collect personally identifiable information (“PII”) from visitors to the Website without separate consent. We do not track users after they leave our Website, and therefore do not interfere with browser settings or “do not track” signals. (2) This Website does not authorize Service Providers or other third parties to (i) collect PII from visitors to the Website without separate consent, or (ii) to track users after they leave our Website. Users logged in to social media platforms operated by Service Providers such as Google may be tracked across multiple websites and such Service Providers may disregard the privacy settings in your web browsers as disclosed in such Service Providers’ privacy policies.
Personally Identifiable Information:Our Website and our Service Providers only collect personally identifiable information (“PII”) with your consent. Collection of PII occurs when you choose to share PII with us when you register for memerbship, request information from us, sign up for newsletters or our email list, participate in a survey, or otherwise contact us. A copy of your personal information PPN has on file can be obtained by contacting PPN at email@example.com.
PII You ProvideExamples of PII you voluntarily submit include: first and last name, medical and caregiver specialties, national provider information number, practice name, email address, postal address, telephone number, and c.v. information.
Practitioner DirectoryBy ticking the box on the membership application titled “I would like to be added to the online PPN Practitioner Directory”, you agree to have your medical practice information shared via email and listed online at www.pandasppn.org/practitioners. Your email address will be kept private. If you wish to have your information removed from the directory, contact us at firstname.lastname@example.org.
Email GroupIf you use the PPN Email Group, you should be aware that any content (personally identifiable information, images, captions, comments, etc.) you submit there can be read, collected, or used by other users of the email group, and could be used to send you unsolicited messages. We are not responsible for the personally identifiable information you choose to submit in the email group. The PPN Email Group is implemented through a third party, Google.
Deleting your Personal InformationA user can have all data erased and forgotten by PPN controlled databases and all future collections stopped. If you would like your information to be deleted, contact PPN at email@example.com.
Information about You from Other Sources:We and our Service Providers may collect personal information about you on the Website and from other sources, including commercially available sources. All the information we collect about you may be combined to personalize your experience, provide you and our clients with Services, to improve our Website and Services, to provide relevant advertising to users, and for other marketing efforts.
USE AND SHARING OF INFORMATIONNon-PII that we or our Service Providers collect is used to improve Services and Website, better provide information about PANDAS and PANS, and connect physicians to share information and discuss PANDAS and PANS. If you elect to provide PII, we may utilize such data to connect physicians to share information and discuss PANDAS and PANS.
Sharing PII with Service Providers and ClientsWe share information submitted to the Website by physicians with other physicians and medical professionals. PII submitted by physicians in connection with PANDAS and PANS may be shared after obtaining the physician’s consent be shared with visitors to the Website looking for information about physicians who specialize in PANDAS and PANS. We will use and retain physician users’ PII and any Sensitive PII contained in curriculum vitae submitted to the Website.
Visitors who Request Services via the WebsitePhysicians and medical professionals users who volunteer PII on our Website consent to be contacted by us, or visitors to the Website.
Email Communications and Promotional OffersAs part of the Services, you may receive communications from us, whether by email or other means. We may send you email, contact you, or engage you in other communication that relates to your use of the Website. We may send offers to certain users on behalf of other businesses. If you do not wish to receive email communications about the Website or promotional offers, please use the “UNSUBSCRIBE” link at the bottom of our email or contact us at “firstname.lastname@example.org”.
Transfers of Business AssetsIn the event PPN goes through a transaction, such as a merger, being acquired by another entity, bankruptcy, or selling all or a portion of its assets, your PII may be part of the business assets transferred. We can provide no assurance that you will be notified in advance of the transfer, if any, of your PII in connection with any such transition or transfer.
Protection of PANDAS Physicians Network and OthersWe reserve the right to access, read, preserve, and disclose any information that we reasonably believe is necessary to comply with law or court order; enforce or apply our conditions of use and other agreements; or protect the rights, property, or safety of our Company, employees, users, or others. This includes exchanging information with other companies and organizations for fraud protection and data breach risk reduction.
Aggregate or Anonymous InformationWe may share Non-PII with third parties.
With ConsentExcept as set forth above, users will be notified when PII may be shared with third parties, and will be able to prevent the sharing of this information.
HOW WE PROTECT AND RETAIN YOUR INFORMATIONWe take security measures to protect against unauthorized access to or unauthorized alteration, disclosure, or destruction of data. These include secure socket layers, firewalls and encryption, internal reviews of our data collection, storage and processing practices, and security measures, as well as physical security measures to guard against unauthorized access to systems. If we retain PII on our systems, we restrict access to PII to employees, contractors, and agents who need to know that information in order to operate, develop, or improve our Website and Services. These individuals are bound by confidentiality obligations and may be subject to discipline, including termination, if they fail to meet these obligations. However, the internet and mobile web are inherently insecure and so we are unable guarantee that the security measures we take will not be penetrated or compromised or that your information will remain secure under all circumstances. We retain individual records of PII and all Non-PII indefinitely. The records can be obtained by the user by contacting email@example.com. PII information can be deleted upon request.
HOW TO CONTROL AND CORRECT YOUR INFORMATIONYou may elect not to provide Web Browsing Data to us or our Service Providers by following the opt-out procedures set forth below, but our Website may not work properly and/or some of our Services.
- All About Cookies: www.allaboutcookies.org/cookies/
- Microsoft Internet Explorer: http://www.microsoft.com/info/cookies.htm
- Mozilla Firefox: http://support.mozilla.com/en-US/kb/Options+window+-+Privacy+panel
- Google Chrome: http://www.google.com/chrome/intl/en/more/privacy.html
- Apple Safari: http://www.apple.com/safari/
- Flash: http://www.macromedia.com/support/documentation/en/flashplayer/help/settings_manager.html
- Google: http://www.google.com/analytics/learn/privacy.html