FAMILY RESOURCES
Looking for a provider familiar with PANS/PANDAS?
Visit the PPN Practitioner Directory
Family Expectations
1. Family education and support is critical, particularly in the early stages of illness. Obtaining material on treating and managing childhood OCD is an important step.
2. PANS has a relapsing remitting course. Most children will experience at least one recurrence of symptom onset due to a PANS trigger.
3. Communication with the school will help alleviate stress and establish a better understanding between faculty and student. Clinicians and parents might also volunteer to provide an informative lecture to class, parents, and teachers, and/or request a 504 Plan, IEP, or SST.
4. Support is important. The entire family is under a large amount of stress and worry. You do not need to do this alone. Find help from family, friends, therapists, and the PANDAS/PANS parent support community.
School Resources
School can be difficult for PANS/PANDAS children. This resource provides information on the school impact, steps a school professional can take to help, and considerations for health care professionals in the education of PANS-affected students.
National Resources
Access a list of multi-disciplinary clinics that specialize in PANS/PANDAS.
Practitioner Directory
Primary care providers, including pediatricians, family physicians, and nurse practitioners, can diagnose PANS/PANDAS and implement the majority of treatments. However, if you need help finding a clinician familiar with PANS/PANDAS, visit the PPN Practitioner Directory.
Watch Our Townhall
Learn about the impact of infection and inflammation on mental health and psychiatric disorders and personal experiences surrounding the extraordinary challenges of PANS/PANDAS in this 90 minute townhall.
Supportive Resources
There are national and regional supportive resources for families affected by PANDAS and PANS. All listed resources are 501c3 non-profits. Inclusion in the listing is not an endorsement or a warranty of the information provided by the organizations.
ASPIRE
www.aspire.care
PANDAS Network
www.pandasnetwork.org
International OCD Foundation
www.iocdf.org
National Eating Disorders Association
www.nationaleatingdisorders.org
Tourette Syndrome Association
www,tourette.org
Western US
Northwest PANDAS/PANS Network
Southwest US
Southeastern PANS/PANDAS Association (SEPPA)
International
PANS/PANDAS UK