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FAMILY RESOURCES

THE PPN MISSION

The mission of the PANDAS Physicians Network is to educate doctors and medical professionals about the treatment, research, and diagnosis of children who have PANDAS or PANS.

Please review the research library, diagnostic guidelines, and treatment options. We encourage you to share these with your physician and/or medical provider. Please encourage your child’s practitioner to visit this site and join the PPN. Joining will give your child’s physician the ability to receive updates on the latest information and ask questions of their peers about cases.

FAMILY EXPECTATIONS

1. Family education and support is critical, particularly in the early stages of illness. Obtaining material on treating and managing childhood OCD is an important step.

2. PANS has a relapsing remitting course. Most children will experience at least one recurrence of symptom onset due to a PANS trigger.

3. Communication with the school will help alleviate stress and establish a better understanding between faculty and student. Clinicians and parents might also volunteer to provide an informative lecture to class, parents, and teachers, and/or request a 504 Plan, IEP, or SST.

4. Support is important. The entire family is under a large amount of stress and worry. You do not need to do this alone. Find help from family, friends, therapists, and the PANDAS/PANS parent support community.

SUPPORTIVE RESOURCES

There are national and regional supportive resources for families affected by PANDAS and PANS. All listed resources are 501c3 non-profits. Inclusion in the listing is not an endorsement or a warranty of the information provided by the organizations.

National Support

International OCD Foundation
www.iocdf.org

ASPIRE
www.aspire.care

National Eating Disorders Association
www.nationaleatingdisorders.org

Tourette Syndrome Association
www,tourette.org

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