PANS/PANDAS CLINICIAN RESOURCES
RECRUITING: PANS/PANDAS IVIG STUDY
Researchers are seeking participants between the ages of 6-17 with a confirmed diagnosis of moderate to severe PANS/PANDAS to enroll in a trial to determine the sustainability of the reduction of the severity of symptoms in children treated with intravenous human normal immunoglobulin and to assess its efficacy in reducing functional impairment associated with PANS/PANDAS.
PANS CHILDREN MAY MANIFEST POTS-2022
Frontiers in Neurology paper describes a higher prevalence of POTS (Postural Orthostatic Tachycardia Syndrome) in patients with PANS than in the general pediatric population and an association of POTS with comorbidities such as joint hypermobility, anxiety, chronic fatigue, and family history of cardiovascular issues. We also observed that POTS was more likely observed during a PANS flare. It is interesting that immune dysfunction, which is present in PANS, may be implicated in some individuals with PANS and POTS.
A Conversation with Stanford’s Jennifer Frankovich, MD, MS
Post Infectious Inflammatory Brain Disorders and PANS/PANDAS
Dr. Frankovich is a Clinical Professor in the Department of Pediatrics, Division of Allergy, Immunology Rheumatology at Stanford University/Lucile Packard Children’s Hospital and Co-director of Stanford’s Immune Behavioral Health Clinic.
PANS/PANDAS RESEARCH AND LITERATURE
The PPN mission is to maintain the industry standard PPN Guidelines for Diagnostics and Therapeutics, foster continuous education and communication within the multi-disciplinary medical community and to sponsor research for developing diagnostic tests, treatment protocols and a cure for PANDAS/PANS within this generation.
BECOME A MEMBER
► Receive email alerts on new research, guidelines, and treatment protocols
► Option to be recognized as a practitioner who works with PANS/PANDAS patients
► Become eligible to apply for a research grant
► Receive occasional members only benefits
Public Health Advisory Committees for PANDAS and PANS are done through a collaboration of health care and community-based partnerships. The list of committees are organized by state.
PPN is dedicated to impacting the research and education of PANS/PANDAS. Your donation to PPN will give physicians and medical professionals the resources they need to diagnose PANS/PANDAS in the early stages of the illness and promptly begin treatment. We are determined to help those suffering now while simultaneously working to fund research that will lead to a cure. Your support makes this possible. Thank you!