Questions & Answers
with Dritan Agalliu, Ph.D.
Watch the extended Q and A from our recent PANS PANDAS AE webinar The Role of Adaptive Immunity and Genetic Risk Factors in Vascular and Neuronal Dysfunction in Post-Infectious Autoimmune Encephalitis, featuring Dritan Agalliu, Ph.D., Associate Professor, Departments of Neurology, Pathology and Cell Biology, Columbia University Irving Medical Center.
PANS/PANDAS CLINICIAN RESOURCES
SEEING YOUR FIRST PATIENT
This publication helps clinicians new to PANS/PANDAS by providing an overview, symptoms and diagnostic criteria, workup recommendations, and expectations.
The PPN mission is to maintain the industry standard PPN Guidelines for Diagnostics and Therapeutics, foster continuous education and communication within the multi-disciplinary medical community and to sponsor research for developing diagnostic tests, treatment protocols and a cure for PANDAS/PANS within this generation.
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Public Health Advisory Committees for PANDAS and PANS are done through a collaboration of health care and community-based partnerships. The list of committees are organized by state.
Research: Nature and Science of Sleep
Artificial Neural Networks Analysis of polysomnographic and clinical features in PANS: from sleep alteration to “Brain Fog”
“Polysomnography was abnormal in 73.9% of our patients which is consistent with the finding of PANS consortium reporting sleep alterations in about 80% of patients with PANS both at the onset of symptoms and after the acute phase.”
Research: Journal of Child and Adolescent Psychopharmacology
Evaluation of Intravenous Immunoglobulin in PANS
“In this population of PANS subjects, all psychometric endpoints studied exhibited statistically significant decreases following six infusions of IVIG…The durability of response is also noteworthy.”
PANS/PANDAS RESEARCH AND LITERATURE
PPN is dedicated to impacting the research and education of PANS/PANDAS. Your donation to PPN will give physicians and medical professionals the resources they need to diagnose PANS/PANDAS in the early stages of the illness and promptly begin treatment. We are determined to help those suffering now while simultaneously working to fund research that will lead to a cure. Your support makes this possible. Thank you!