PPN Facebook PPN Twitter PPN Instagram

Stanford Online CME Activity:
Presentation and Management of Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS)

Margo Thienemann, MD

PANS/PANDAS CLINICIAN RESOURCES

FLOWCHARTS

Follow the process for determining the appropriate diagnosis and symptom severity based treatment protocols for mild, moderate, and severe/extreme cases.

DIAGNOSING PANS/PANDAS

Access published criteria, symptoms associated with PANS and PANDAS, and additional tools to help health care providers navigate evaluating their patients.

TREATING PANS/PANDAS

Access information on treating PANS and PANDAS with antimicrobials, immunomodulatory therapy, and psychotherapeutic and behavioral therapy.

SEEING YOUR FIRST PATIENT

This publication helps clinicians new to PANS/PANDAS by providing an overview, symptoms and diagnostic criteria, workup recommendations, and expectations.

NEW: NIH FUNDS PANS AND PANDAS RESEARCH

NIH-funded research project

Elucidating the role of RXRA in the myeloid lineage in post-infectious basal ganglia encephalitis

PI/Project Leader: Dritan Agalliu, PhD
Associate Professor of Pathology and Cell Biology (in Neurology), Columbia University Irving Medical Center

NIH-funded research project

Anti-interneuron antibodies in rapid-onset pediatric OCD: clinical generalization and target identification

PI/Project Leader: Christopher Pittenger, MD, PhD
Professor of Psychiatry at Yale University, Assistant Chair for Translational Research in Psychiatry, and Director of the Clinical Neuroscience Research Unit , the Neuroscience Research Training Program (NRTP, the research track of the Yale adult psychiatry residency), the Yale OCD Research Clinic, and the new Yale Program in Psychedelic Science

UPDATED: IVIG Treatment for PANS/PANDAS

New article on Therapeutic Plasma Exchange in adolescent and adult patients with autoimmune neuropsychiatric disorders associated with streptococcal infections

RECENT ONSET OF PANS/PANDAS?

Your patient may qualify for a treatment study.
Patients 6-17 years old may qualify to participate in research that will help determine the sustainability of the reduction of the severity of symptoms in children treated with IVIG. All participants will receive the study drug and placebo. Help with travel expenses provided.

OUR MISSION

The PPN mission is to maintain the industry standard PPN Guidelines for Diagnostics and Therapeutics, foster continuous education and communication within the multi-disciplinary medical community and to sponsor research for developing diagnostic tests, treatment protocols and a cure for PANDAS/PANS within this generation.

BECOME A MEMBER

► Receive email alerts on new research, guidelines, and treatment protocols
► Option to be recognized as a practitioner who works with PANS/PANDAS patients
► Become eligible to apply for a research grant
► Receive occasional members only benefits

ADVISORY COMMITTEES

Public Health Advisory Committees for PANDAS and PANS are done through a collaboration of health care and community-based partnerships. The list of committees are organized by state.

HELP PANS/PANDAS CHILDREN GET THE CARE THEY NEED TO RECOVER.

PPN is dedicated to impacting the research and education of PANS/PANDAS. Your donation to PPN will give physicians and medical professionals the resources they need to diagnose PANS/PANDAS in the early stages of the illness and promptly begin treatment. We are determined to help those suffering now while simultaneously working to fund research that will lead to a cure. Your support makes this possible. Thank you!