Our vision is that PANS/PANDAS will become easily diagnosed and treated with accessible therapies that dramatically reduce suffering and lead to a cure.
EXPANDING RESOURCES.
EMPOWERING CLINICIANS.
CME ACTIVITY AVAILABLE
Denied Due to Lack of Medical Necessity: Responding to Insurance Denials for PANS/PANDAS Treatments is designed to sharpen the advocacy skills of treating physicians and medical teams, thereby helping patients receive appropriate managed care treatment authorizations.
RESEARCH UPDATE WEBINAR
Looking at the Brains of PANDAS/PANS Children:How Peripheral Infection Triggers Brain Inflammation discusses:, presented by Dritan Agalliu, PhD, is 90 minute on-demand webinar including a presentation followed by a Q and A on groundbreaking research.
EXPANDED TRANSLATED RESOURCES
Our Spanish translation of the PANS/PANDAS diagnostic flowchart is the first step in making our most requested resource available in multiple languages and broadening our global impact.
EDUCATIONAL ADVERTISING
Strategic placement of educational ads with medically oriented organizations focusing on nurse practitioners, pediatric specialists, psychologists, psychiatrists, and emergency room staff.
IN PERSON OUTREACH
PPN was proud to provide PANS/PANDAS resources, communications, and clinician support at the following conferences:
- International OCD Foundation
- National Alliance on Mental Illness
- Pediatric Academic Societies
- American Academy of Pediatrics
Helping Find Answers through Research
“Thank you for your incredible dedication to children with pediatric acute-onset neuropsychiatric syndrome (PANS). Your partnership continues to be the driving force behind our expanding PANS community, which stands as a guiding light for families at Stanford and around the country. Thanks to you, our team is broadening the understanding of this complex condition and sharing it with more providers to treat more kids…” – Jennifer Frankovich, MD, MS
PANS/PANDAS: Looking Back. Looking Forward.
To commemorate the 25th anniversary of the publication of the landmark paper on PANDAS, PPN sat down with Dr. Susan Swedo for a retrospective interview to discuss the research, recognition, and future of PANS/PANDAS. Included is an urgent call to action for the AAP to update their policy to reflect research and clinical observations.
“The AAP urgently needs to recognize PANS and PANDAS. Pediatricians are now desperate for their support to recognize and treat these serious illnesses.“
-Susan Swedo, MD Scientist Emeritus, National Institutes of Health, Chief Science Officer, PANDAS Physicians Network