PANDAS Physicians Network
2018 Impact and Actions
PANDAS Physicians Network reached a countless number of physicians and medical professionals through our direct outreach program. This program focuses on providing PANDAS/PANS resources at medical conferences and local meetings while placing educational ads in relevant publications. The goal is to increase the number of physicians and medical professionals that understand how to identify and treat those suffering from PANS/PANDAS. Our 2018 impact includes:
American Academy of Pediatrics outreach:
✓ AAP National conference exhibit booth
✓ UT, GA, and NJ local AAP conferences
✓ Pediatrics ad – Oct and Nov issues
Printed educational material:
✓ New England school nurse conference
✓ Long Island school nurse conference
✓ International Association of Eating Disorder Professionals
✓ Grand rounds (Wisconsin)
✓ Grand rounds (Pennsylvania)
Medical conference presence:
✓ American Academy of Child and Adolescent Psychiatry
✓ National Association of Pediatric Nurse Practitioners
✓ Anxiety and Depression Association of America
✓ Society of Pediatric Nurses
✓ Columbia University
✓ International OCD Foundation
✓ NC Psychiatric Association
PANDAS Physicians Network grew its library of digital and print resources for the medical community. We are continuously working to broaden our resources and provide validated, trusted information. Our 2018 impact included:
✓ Created and distributed a printed booklet of the medical primer “Seeing Your First Child with PANDAS/PANS”
✓ Translated PANS/PANDAS information into 10 languages
✓ Distributed 100 complimentary posters to medical offices and school nurses/health aids, upon request
✓ Developed a new diagnostic and treatment guideline flyer
✓ Added new presentations to the PPN website
✓ Completed our JCAP distribution project, which provided medical professionals with complimentary copies of the PANS Research Consortium’s treatment guidelines
PANDAS Physicians Network supports the physicians and medical professionals that are dedicated to helping those suffering from PANDAS and PANS. We not only sponsor educational opportunities, but provide assistance to frontline clinicians so patients can get the care they need. Our 2018 actions included:
✓ Sponsored CME credits for Columbia University Medical Center conference
✓ Coordinated speakers for presentations
✓ Provided complimentary printed resources to medical professionals presenting on PANDAS/PANS
✓ Supplied a platform for approved PPN medical professional members to ask questions and communicate with their peers
In May 2018, PANDAS Physicians Network (PPN) granted funds benefiting Dr. Jennifer Frankovich’s research at Stanford University School of Medicine and Lucile Packard Children’s Hospital Stanford.
This funding will enable Dr. Frankovich’s team to advance their understanding of PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome) and the treatment of patients with this debilitating disorder. Specifically, PPN supported an analysis of cytokines, vascular antigens, blood brain barrier disruption, and metabolic peptides.
HELP US DO MORE IN 2019!
PLEASE CONSIDER DONATING TO PPN.
In 2018, you helped PPN educate the medical community about how to achieve lasting remissions in their patients suffering from PANDAS/PANS.
We know we can do even more. We hope you feel inspired to contribute in any way you can. Thank you!