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RESEARCH VOLUNTEER OPPORTUNITIES FOR PANS/PANDAS

PANS IVIG Study
Researchers aim to enroll 92 patients with a confirmed diagnosis of moderate to severe PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) to determine the sustainability of the reduction of the severity of symptoms in children treated with intravenous human normal immunoglobulin and to assess its efficacy in reducing functional impairment associated with PANS. This is a randomised, double-blind, placebo-controlled superiority study.
https://www.pandasppn.org/ivig-study/

Stanford Seeking Healthy Controls for PANS Research
Stanford is currently seeking healthy children and young adults (ages 4-25) to help research the link between infections, immune activation, and the brain. Samples will be drawn at Stanford. Compensation and service hours are available.
https://med.stanford.edu/pans/research/participate-in-research.html

Trial of Naproxen Sodium for the Treatment of OCD in Children With PANDAS
The investigators propose to systematically evaluate the effects of naproxen sodium on anti-obsessional and behavioral improvement in children with PANDAS.
https://www.clinicaltrials.gov/ct2/show/NCT04015596

MGH PANS/PANDAS COVID Survey Study
The purpose of this study is to examine how the pandemic has impacted children with Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) or Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS).
https://www.pandasppn.org/mgh-pans-pandas-covid-survey-study/