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Our goal is to provide your child’s medical team the PANDAS/PANS resources they need.

The PPN 2020 goal is to provide your child’s medical team the PANDAS/PANS resources they need through REACH, RESOURCES, and RESEARCH. Read below to learn more about the actions we plan to take in the upcoming year.

ACTION #1: We will reach 20,000 members of the medical community.

Attending conferences allows PPN to empower medical professionals to confidently diagnose and treat their patients, connects us with decision makers; and ensures accurate information is disseminated. In 2020, we will attend conferences servicing a wide range of medical specialties that encounter PANDAS/PANS patients, including: 

→ Physicians at the American Academy of Pediatrics National Conference

→ Psychiatrists at the American Academy of Child and Adolescent Psychiatrists National Conference

→ Nurse Practitioners at the National Association of Pediatric Nurse Practitioner Conference

→ Medical students and residents at the National Conference of Family Medicine – Residents and Medical Students

ACTION #2: We will develop resources to further support your child’s clinician.

We must ensure clinicians have the resources they need to diagnose and treat their patients. Our 2020 goals include:

✓ Update diagnostic and treatment flowcharts
✓ Share clinical / “from the bedside” experiences, commentaries, and editorials
✓ Maintain our current programs that support medical professionals, such as complimentary printed resources, peer communication, and educational presentations
✓ Aid third party organizations with inquiries regarding PANDAS/PANS, ie. state inquiries for information collection and literature reviews for pending legislation
✓ Collaborate with nationally recognized pediatric organizations to help their members with requested material and lectures.

ACTION #3: We will sponsor research that will ultimately lead to a cure.

PANDAS Physicians Network awards grants for research that shows significant promise in the identification, treatment, and understanding of PANDAS/PANS.

Past grant recipients include Texas A&M University, Stanford University School of Medicine and Lucile Packard Children’s Hospital Stanford, and Massachusetts General Hospital.

Our goal is to continue to fund promising studies that will both help those currently suffering from PANDAS/PANS and will ultimately lead to a cure within this generation.